ABI/TBI Links

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Internet Sites

American Brain Tumor Association
Publications for brain tumor patients, families, and educators of children with brain tumors. Publication titles may be viewed online and ordered.

American Cancer Society
Wealth of information about cancer research (including brain cancer) and statistics. Online publication of ACS journals. Directory to local ACS offices which offer publications for parents and educators of children with cancer.

The Aneurysm Information Project
Research, prevention, latest news, imaging, and more are featured at this site.

Brain Injury Association of America
This site is filled with articles, links, and current information on brain injury. State chapter addresses and phone numbers are available from this site. Resource information and publications are available through your national and state chapter of the BIA.

Brain Injury Association of Connecticut
Statistics and additional internet resources.

The Brain Injury Information NETwork 
Formerly known as John & Clara's TBI/ABI Related Sites and Information. Excellent brain injury resource list under the Support Menu heading.  TBINET features archives for 26 different mailing lists for brain injury and other medically related topics including TBI survivor support, caregiver support, stroke awareness, epilepsy/seizures and coma.

Brain Injury Ring
This site is made up of the homepages of brain injury survivors.

Centre for Neuro Skills
This site features free reprints of published research articles on TBI, an excellent brain map under "Research," and valuable information on mild traumatic brain injury (MTBI). The Traumatic Brain Injury Resource Guide and quarterly TBI newsletter are available online. Large site with a lot of information.

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Children's Safety Network: National Injury & Violence Prevention Resource Center
Injury and violence prevention links, resources and publications.

Council for Exceptional Children
An international organization dedicated to improving the educational outcomes for persons with exceptionalities. Access to the ERIC Clearinghouse on Disabilities and Gifted Education from this page (www.eric.ed.gov).  Also provides information on special education conferences and resources. 

Epilepsy Foundation of America
Links to current online magazine, Epilepsy, USA. Additional neurologic articles and publications are available. Answers to FAQs, a marketplace and chat rooms are featured.

Epilepsy in Young Children
Designed as a support page for parents of children with epilepsy. Personal stories posted. Links to epilepsy resources.

Family Caregiver Alliance
An information resource site on long-term care. Has a clearinghouse of fact sheets, online support, legislative alerts, a newsletter and more.

Federation for Children with Special Needs
A center for parents and parent organizations who work together on behalf of children with special needs and families. Online information on IDEA legislation. Many links to related services and organizations.

GSA - U.S. General Services Administration
Home of the Center on Information Technology Accommodation (CITA), the government's principle advocate and coordinator for making information technology available to person's with disabilities.  Search for "CITA" and view selections (1) and (3) for information on Section 508 and the Federal Accommodation Programs.

The Harborview Medical Center Injury Prevention and Research Center (HIPRC)
Evaluates and reports on child injury prevention strategies. Includes interventions for the prevention of pedestrian, bicycle, and recreational injuries.

HEATH Resource Center/George Washington University
National clearinghouse on post secondary education for individuals with disabilities.  Publications and featured resources, FAQs/answers, additional links.  Formerly sponsored by the American Council on Education (ACE).

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HDI Publishers
An excellent source for research, texts, and treatises in the field of brain injury and concussion.

IM-PACT - Health Sciences Centre
Injury prevention center of Children's Hospital in Winnipeg, Manitoba Canada dedicated to the prevention of childhood and adolescent trauma.  Site features online newsletter and a bulletin board.

L & A Publishing/Training
Lash & Associates produces excellent resources for families and educators of children and adolescents with brain injuries. Offers school series tip cards on brain injury in children and adolescents each with a concise summary of information on a specific topic. Booklets and manuals are also available. Items can be ordered online.

MEDLINEplus
A service of the National Library of Medicine/National Health Institute.  Health topics, drug information, dictionaries, directories. 

National Center for Health Statistics (NCHS) 
The NCHS is sponsored by the Centers for Disease Control (CDC). Use FEDSTATS  A-Z to search information and statistics produced by several public agencies.

National Information Center for Children & Youth with Disabilities (NICHCY)
Many online publications on a wide range of disabilities. Fact sheets, briefing papers and articles are available. Excellent resource site.

National Institute of Neurological Disorders and Stroke (NINDS)
Comprehensive information on disorders of the brain and nervous system.  Free fact sheets and brochures available upon request. Sponsored by the National Institutes of Health.

National Rehabilitation Information Center ( NARIC)
Information on assistive technology, children with special needs, spinal cord injury, stroke, traumatic brain injury, education and many other related topics.  Knowledge base of disability and rehabilitation resources, research  literature and monthly newsletter.

National Safe Kids Campaign
National organization dedicated to the prevention of unintentional childhood injury.

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The NeuroScience Center
Website for NeuroScience Publishers and Psychological Services, Inc. Current and past articles from the Journal of Cognitive Rehabilitation posted online.

NeuroScience Web Search
An online search site for information on topics in neuroscience.

Office of Special Education - Curry School of Education, University of Virginia
Links to TBI organizations, general resources, and publications.  Primary emphasis on education.

ParentPals Special Education Guide
Teaching tips, games, featured articles, publishers links, continuing education courses and message board.

The Perspectives Network, Inc.
An international, non-profit organization founded by a survivor of brain injury in 1990. Excellent resource site with many online articles available.

PRO-ED, Inc.
Publisher of many books on special education, speech, language, and hearing. Many ABI/TBI materials are available and can be ordered online.

PUBMED
Provides free access to MEDLINE. Search service with access to nine million citations in MEDLINE and Pre-MEDLINE (with links to participating online journals and other related databases. Search by keyword, author, or title.

Special Education Resources on the Internet (SERI)
Links to sites on speech impairment, special needs and technology and many other special education resources. Access to online articles and publications. Excellent resource site.

Traumatic Brain Injury Model Systems
Coordinated by Kessler Medical Rehabilitation Research and Education Corporation.  Site features the TBI Research & Publications Registry, TBI National Database, Facts & Figures newsletter.  Project funded through the National Institute on Disability and Rehabilitation Research (NIDRR). 

United States Department of Education
Detailed listing of U.S. Dept. of Education's products, services and publications. Information on the education initiative "No Child Left Behind."

University of Washington School of Medicine - Dept. of Rehabilitation Medicine 
One of 17 TBI Model Systems centers funded by the NIDRR.  Links/resources, related publications, online newsletter.

While You Are Waiting
A wonderful site dedicated to people who have a loved one in a coma. Full of information and emotional support. Excellent!

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Chat Rooms

BrainInjuryChat.org
Peer support for people living with brain injury.  Nine chatrooms, links and general information.

Neurology Chatrooms at Massachusetts General Hospital 
The Dept. of Neurology at Massachusetts General Hospital (MGH) offers three different chat room environments in addition to BrainTalk Communities, an online patient support group for neurology at MGH.


List Services

TBINET Email Support Groups

CARE-TBI    Caregiver
 
TBI-SURV    TBI Survivors Support (Survivors Only)

St. John's University Traumatic Brain Injury Email Forums

TBI-FAM      Family

TBI-PROF    Professionals

TBI-SPRT     Support Group

Working and Brain Injury

TBI-WORKING

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