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The Joshua Child and Family Development Center
 The Joshua Child and Family Development Center is a non-profit organization that supports programs designed to improve the lives of individuals and families living with Tourette Syndrome, Asperger Syndrome, Obsessive Compulsive Disorder and their Associated Disorders through research, education, social and clinical programs. 

 National Information Center for Children and Youth with Disabilities (NICHCY)
NICHCY is the national information center that provides information on disabilities and disability-related issues. Anyone can use their services—families, educators, administrators, journalists or students. Their special focus is children and youth (birth to age 22).  Find information about:

Genetic and Rare Conditions Site, University of Kansas Medical Center
A source for information on Genetic Conditions and Birth Defects for Professionals, Educators and Individuals, Lay Advocacy Groups and Support Groups.

NOAH:  New York Online Access to Health
NOAH provides access to high quality full-text consumer health information in English and Spanish that is accurate, timely, relevant and unbiased.  Ask NOAH about Health Topics and Resources.

U.S. Department of Health and Human Services National Institutes of Health
The National Institutes of Health (NIH) is one of the world's foremost medical research centers, and the Federal focal point for medical research in the United States.  The goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability, from the rarest genetic disorder to the common cold.

KidsHealth
The Nemours Foundation, established in 1936 by philanthropist Alfred. I. duPont, is dedicated to improving the health and spirit of children. The Foundation supports important clinical research and creates award-winning, family-friendly health information in a number of formats including print, video, and online.

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National Organization for Rare Disorders (NORD)
NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. 

National Institute of Neurological Disorders and Stroke (NINDS)
 NINDS is one of the 27 separate Institutes and Centers that comprise the National Institutes of Health - the Federal focal point for medical research in the United States.  Browse an alphabetical index of disorders (includes synonyms and research topics).  Review patient studies, research literature and press releases.

Spina Bifida Association of America
The Spina Bifida Association of America (SBAA) was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.  SBAA provides services such as:

The Spina Bifida Assessment of Neurobehavioral Development, International
(Sandi Project)
The Sandi Project is a collaborative research project between the University of Texas-Houston, The Hospital for Sick Children in Toronto, Canada, and several other Houston hospitals. The project aims to identify the factors responsible for spina bifida such as genetic factors, environmental factors and factors related to the Central Nervous System. 

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